To me, its simple. I don’t want kids to have to go through what I went through. No child should be told ‘you have this thing. There is no hope. Have a nice life’. I was 13 when I was diagnosed with fibromyalgia. 13 when they told me there was no treatment, no hope, no cure, nothing. Didn’t even tell me I should seek care with a good and understanding rheumatologist. Or that there were alternatives to western medicine like acupuncture/pressure, herbs, oils, biofeedback, myofascial massages, and a whole host of other things I could try. They basically told me to give up and resign to my fate then and there. I wasn’t even told that there were conditions connected to fibro like ibs, intersticial cystics, and the rest of them. Even if it was 11 years ago, and things like Lyrica [which I have problems with to being with but that's not for here], and the new research thats available. I was 13 and hopeless. And in pain. And scared. And confused. And no child should have to go through that at all. It’s simple really.